Three Levels of Connectivity
Description |
Contributes to |
Technology Requirements |
Access condition options |
Example Queries |
|---|---|---|---|---|
At this level, the provider commits to openly publish online some standardised metadata about the offered resource, and hence make this available to the VP via the VP Index. |
Resource discoverability via open metadata |
FAIR Data Point specification, EJP RD metadata schema |
Open Access |
What are the URLs of Catalogs that allow deeper queries? What are the available biobanks? What are the available patient registries? |
Description |
Contributes to |
Technology Requirements |
Access condition options |
Example Queries |
|---|---|---|---|---|
At this level, a resource is identified based on remote queries regarding its characteristics and content, responding with yes/no or approximate record count information. The questions are answered against summary metadata and safe content of each catalogue/resource. |
Resource discoverability via controlled querying of catalogue/resource summary info and/or safe resource record data |
EJP RD Beacon v2 API implementation |
Open or authenticated user access, as per the preference of each resource |
|
Level 2 – Querying at the catalogue/resource level |
Involves answering queries based on the summary level metadata of RD resources |
EJP RD queryable metadata |
Open user access |
Is the catalogue associated with the Marfan syndrome [ordo:Orphanet_558]? |
Level 2 - Querying at safe-record level |
Entails answering queries based on individual records of resource data. |
EJP RD queryable data (obfuscated record data) |
Open or authenticated user access, as per the preference of each resource |
Find resources based upon how many patients have Autosomal recessive polycystic kidney disease [ORPHA:731] and had symptom onset before 8 years old? |
Description |
Contributes to |
Technology Requirements |
Access condition options |
Example Queries |
|---|---|---|---|---|
At this level, the provider commits to support interrogation and analysis on its resource’s rich content. |
Data reuse and analysis |
SPARQL, FAIR Data Train, Data available according to the Clinical And Registry Entries Semantic Model (CARE-SM) |
Open access, Authentication, Authorization |
Training a prediction model on distributed data. |